My Thoughts on the “Opioid Crisis”.

 

There is no doubt, that the use of opioids has increased over the last 60+ years, spurred on by advertising to the general public, and prescribed willy-nilly by physicians. Apparently, no one saw the impact opioids would one day have on our society.

Really??!!Read More »

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Grab your pets! Costume Contest Fundraiser.

Kitty Quarters is an all cat, rescue, adoption, and education center in Torrington, CT. They are holding a Pet Costume Contest fundraiser on 10/29/17. Please consider attending, or donating. This is a great cause, and it’s tax deductible!

Go to www.kittyquarters.org, and register, or donate!

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Please share this event!

A Spoonful of Sugar, Helps the Medicine go Down.

Over the last three years, I have been prescribed more than 30 different drugs to cure, treat, and control my symptoms. Each ranging in price from $20.00 to over $1,000 for a 30 day supply. Many, were only used for a few days, due to side effects, at which time, another was prescribed. I currently take only 3 on a daily basis, with a fourth, as needed. I am not cured, and my symptoms are still not properly controlled.

There is no doubt, that there is a ton of money to be made in pharmaceuticals. The chronically ill are lining the pockets of big pharma. Well, sort of…Read More »

Find Out How You Can Help in the Fight Against Tick-Born Illnesses

Shared. Awesome!

The Lyme Blog

A professor of microbiology and immunology at Drexel University’s College of Medicine is on a mission to map tick-borne illnesses and he is asking for your help to do it. Dr. Garth Ehrlich is collecting ticks from around the country to give science and medicine a better view of where tick-borne illnesses are and what tick species are spreading them and he is asking you to mail him any ticks that you may find.

When it comes to Lyme disease science already has a good view of the areas of the nation that are at the highest risk but recent years have seen a widening of that range and Ehrlich is looking to better understand where Lyme is spreading and increase knowledge on other tick-borne illnesses. Your data could help in giving science and medicine an upper hand in diagnosing and treating Lyme disease as well as other pathogens carried…

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What’s in your wallet?

I spent one hour, and twenty minutes on hold yesterday, waiting to speak with a human being, at the Connecticut Department of Social Services.  In case you haven’t heard, the State of Connecticut has no budget. For one reason, or another, the powers that be in the capital city, can not agree on how to effectively write, propose, discuss, or implement a budget for the State.

Read More »

Grandma Pauline’s Banana Bread.

This is my grandmother’s recipe for banana bread. It was passed down through the family, to my mother, her siblings, their children, and to me, and my sister. This is by far the best banana bread I have ever had.

Grandparents
Grandpa Joe, and Grandma Pauline, at their wedding in 1901.

When making this banana bread, it is best to make it with over ripe large bananas.  It makes one standard loaf, and can be doubled as is. You can also add nuts, and/or chocolate chips, for an even yummier treat.

However you make it, please make it with love, and pass it on!

 

Pauline’s Banana Bread

1 hr. at 325 degrees F.

Cream together:
1 cup sugar
1/2 cup butter
1/2 tsp. salt

Mash:
3 large ripe bananas, and add 2 well beaten large eggs.
Stir until completely combined.

Add this mixture to the creamed ingredients, above,
and mix well.

Add 1 tsp. Baking powder to 2 Cups of flour.

Combine flour mixture, and banana mixture slowly, and thoroughly.
When almost completely combined, add 1 tsp baking soda, into 1/2 tbsp boiling water, and add this to the batter. Continue to stir until fully combined.

Pour into a standard size loaf pan. (I grease bottom)

Allow to cool in pan, before removing or slicing.

Enjoy! ❤

 

 

Featured Blog: How to Get On.

Featured Blog: How to Get On.

So, the mail arrives, and you see the seal. The logo of the Social Security Administration. You know, that government entity that has been taking your money for years? This time, it is not a statement of benefits, it is the long awaited decision letter. Your heart sinks, and your stomach churns as you open it. Before you even read it, you are planning a call to your lawyer, and organizing years of paperwork in your mind. There is no reason to be hopeful. Yes, you have again, been denied 

You are not alone. Thousands of people get these notices every day. You’d think, as logic would dictate, that after paying into social security throughout years of employment, that it would be a lot less difficult to recoup the money the US government has so nicely put away for us…for just this purpose. Sadly, no. They hold onto it with a death grip, and treat us like liars & cheats for years before giving in. Usually just before we succumb to hopelessness.

There are many resources online to aid you in your pursuit of your benefits, but I found a beautiful, and very well written blog here on Word Press that I would like to share with you:

How to Get On, will not only inform you, but the artwork will mezmerize you.

Don’t forget to check out “Peace, Love, Spoons” as well.

What’s on my mind?

You just had to ask…

First of all, let me clue you in to a few things in case you are one of those people who do not know me personally. I am a rebel. I have been a rebel since birth. It is most likely in my DNA. (Actually, given the results of my DNA test, I can guarantee it.) I stick up for the underdogs, and I am not afraid to say what I think.

About. Anything. To. Anyone.

Three years ago, I was tested, (not CDC positive) and diagnosed with Lyme Disease, by not one, but 3 healthcare professionals. I was treated with 2 rounds of Doxy., and when I finally found a Lyme Literate Nurse Practitioner, I was treated with more oral, and finally IV (PICC Line, antibiotics, probiotics, and supplements. I “herxed” like hell, but through it all, the only symptoms that showed improvement were my neuro symptoms. Unfortunately, my LLNP moved, and I had to stop treatment. I am continuing to be diagnosed, and only getting worse, as I am unable to tolerate many prescription medications.

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Lyme Literate Doctors, do not grow on trees. They are difficult to find, expensive, and more importantly, most do not accept any form of insurance. When you are forced to see a regular Doctor (PCP), you will most likely find that they either do not believe in Chronic Lyme Disease, or feel that because your tests are CDC negative, that you no longer have Lyme Disease. Well, let me tell you, and them:

That is total Bullshit.

There are 3 different types of “Lymies”.

1.“Oh, I had “Lymes” disease, but I’m fine now.”

Yes, there are people who get bit by a tick, have a rash, and flu-like symptoms, take a round of antibiotics, are happily cured, and go on with their lives, never having the disease rear it’s ugly head again. (These are the cases that doctors focus on, and use as examples of how the disease works.)

This is the exception not the rule.

2. Celebrity Lyme claims: “Look at me! I’m just like you!”         NO, YOU ARE NOT!

High profile celebrities. They come out of nowhere, and declare that they have been suffering with Lyme Disease for months or years. They give interviews telling the public how they were bedridden, could not perform, had seizures, and paralysis, but were cured using some European treatment, administered by an elite team of doctors, in some far away land. Well really now, who gives a shit. None of us can afford that. You are doing the public a disservice. You have money, and celebrity status. If you really want to help, get out there, and fund some research, open a treatment center, Get on our side. Petition the CDC, and the IDSA for change.

If you don’t really get out there and help, then I’d appreciate it if you would just STFU already.

3. The Warriors.

Then, my friends, there is “US”. The average person with Lyme Disease, or any other disease that may or may not be related to Lyme Disease, and who is probably also diagnosed with ME, CFS, or Fibromyalgia, because; “We don’t know what the fuck is wrong with you.

Yep, that’s us, and we are pretty much screwed.

Whether you have been suffering for years, or months, in treatment, or not, able to work, or fighting for your disability benefits, we are all in the same boat. We have all been diagnosed, misdiagnosed, labeled, tested, poked, prodded, x-rayed, scanned, laughed at, dismissed, and ignored.

davskull2

It’s all in your head… Here, take some Prozac.

It’s time for this mistreatment, and malpractice to end. Yes, I said malpractice. It has been more than 40 years since Lyme Disease was “discovered” in Lyme, CT.. Fourty years, of lies, misinformation, patents on bacteria, and vaccines, (none of which have worked, BTW), fourty years of cover-ups, denials, suffering, and death.

Whether your infection is from Borrelia Burgdorferi, or one other hundreds of strains of the Borellia bacteria, whether you have a co-infection, (You probably do.) or not, you are in for a rude awakening. The only Borrelia strain mentioned in the IDSA guidelines is “Burgdorferi”. Look it up. IDSA

“There are 5 subspecies of Borrelia Burgdorferi, over 100 strains in the USA, and 300 strains worldwide. This diversity is thought to contribute to the antigenic variability of the spirochete and its ability to evade the immune system and antibiotic therapy, leading to chronic infection.” ILADS

No one gives a shit about Lyme Disease. Especially, Chronic Lyme, or what doctors like to call, “Post Treatment Lyme Disease Syndrome”. (PTLDS)

At least not the CDC, IDSA, or your PCP.

Chances are, once you become ill, you will spend months, years, or decades trying to find a diagnosis, and treatment that works. There is not a single treatment that works for everyone at this stage. I believe that is because we are not all infected in the same way, or by the same bacterial strain, (or strains), and various co-infections. We must not forget that we are also all genetically different, with a variety of gene mutations, that may make us more or less susceptible to certain diseases, and may affect how our bodies accept treatments.

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That being said, I think what we need is someone, or a group of someones, willing to take a bunch of us who are chronically ill, (I will volunteer) and take samples. Samples, of blood, urine, tissue, spinal fluid, brain tissue…whatever, and test it. Do whatever they have to do to determine what sort of bacteria, virus, or parasite is affecting our health. We need a comprehensive study, that is unbiased, and not tainted by bureaucracy. We need scientists. Not Doctors, Not the CDC, or the IDSA. No CEO’s, and no one who can be bought. We need the results to be undeniable, reported, and utilized to create treatments, and cures. We need action now, and no, BIG Pharma, you will not charge us our first born to be healed. I don’t know, maybe we can get Elon Musk in on it. He’s helping Puerto Rico, why not an even bigger humanitarian campaign?

On that note, we also need Lobbyists, to Lobby against Lobbyists.

Woe be to you all when the truth comes out that you’re all in cahoots with each other, to keep the world sick, and buying your poison. Shame on you.

Well, I have gone on with this rant for long enough. It is only out of frustration that I “act up”, as my mother would say, but things like this need to be said, need to be shared, and never forgotten, or left until “Awareness Month”. This is a daily fight for millions, and it should never be forgotten, because you could be next.

 

 

 

 

‘Tis the season.

The weather has finally turned here in New England, and, for the moment, it actually feels like fall. Although I love the warmth of summer, as it is easier on my aching bones, I also love the changing of the seasons.

ruwetone
Ruwet’s Farm, Torrington, CT

I love the colors, the smell of fireplaces, and wood stoves starting up for the first time, the aroma of apple pies, and hot cocoa. The musty scent of hay bales, and the crunchiness of  corn stalks beneath my feet. I love watching the grandchildren trying to pick the biggest pumpkin, and attempting to carry it to the wagon. I love their anticipation of Halloween, and the costume planning.

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Ruwet’s Farm, Torrington, CT

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Real life, real problems. Part 2

As I said in Part 1, many of us living in the paycheck to paycheck world are struggling to survive, and it is becoming harder every year. But, what if you no longer have a paycheck? If you have a chronic illness, and are unable to work, how will you survive? This question, and the uncertainty of what is to come, can create even more stress in your life, and in turn, cause flares, and relapses.Heart-Attack-Symptoms-Different-Young-Women-700x395

If you are single, that one income you had, may be completely gone, along with your savings. Without a private short term disability plan, or one through your employer (FMLA), you may be forced to apply for healthcare, food stamps, and cash assistance through your state’s Department of Social Services.

(While you wait to be denied, repeatedly, for SSD.)

If you have been deemed unable to work by your doctor, and you qualify for state assistance, be prepared to totally change your lifestyle. Unhappy girl in a bedroomIf your illness is chronic, and you know you may be out of work for years, you should start by applying for housing. The money you receive from the state will not be enough to pay your standard rent. You should also apply for SSD, and prepare to clip coupons to save money on food. Just an FYI, if you live in CT, you will likely get $219 in cash, and $192 (reduced from $194 on 10/1) in food stamps. Yes. A month. Say goodbye to the premium cable package, the supplements, and the LLMD, or specialist that may not be covered by your new insurance.

The best thing could be to live with a family member. This option may or may not be the best for your situation, but if it is, you will still be able to contribute to the household. friends-talking-to-each-otherAlso, this could be a temporary option until you can find subsidized housing.

Be prepared to be annoyed, and frustrated, a lot. Keeping your computer, and internet access will make your life a lot easier. You will need it, especially if you do not drive. Many services can be applied for online, including transportation, free cell phones, state, and federal benefits.

Whatever you do, don’t lose hope. The initial panic (and embarrassment) you feel when you know you will have to ask for help from the government will pass. The services are there for you, and people who need help. YOU NEED HELP. IT’S OK!!!

Remember while applying for services, and assistance, that these things may take some time. Don’t be afraid to ask for help from friends & loved ones.

Things to do:

  1. Get proof from your doctor that you are unable to work.
  2. Get proof from your employer that your employment has ended.
  3. Apply for healthcare, food stamps, and cash assistance in your state.
  4. Apply for SSI, and/or SSD (ssa.gov)
  5. Apply for subsidized housing.
  6. Start collecting, and organizing your medical records.
  7. Mark calendar with application dates. So you can call for status updates.
  8. Keep all Dr. appointments.
  9. Take your medications.
  10. REST.
    Young Woman With Glasses Looking Up From Behind Stacks Of Paper

Once approved for state benefits, you can apply (Where available) for free transportation to appointments, reduced bus, or public transportation fees, and free cell phones.  Also, don’t be afraid to seek out food banks, and free meal services that you may qualify for.

If you are unable to complete any of these forms on your own, or if they seem overwhelming, it is perfectly acceptable to have a friend, or family member help, or request special assistance. Don’t be discouraged if you need a day or two to complete a form, or application. Some of us suffer from fatigue, and pain, and brain fog. Take your time, but in a timely manner. Be aware of deadlines. Check your work. Forgetting to sign a form, or missing a section can result in delays. VERY ANNOYING DELAYS. Do not be afraid to call and ask for updates on your applications.

The most important thing that you can do during this time, is to take care of yourself. Getting things like this done, is work. user-1817382-2016-02-19-12-12-11Make sure you are following doctor’s orders, eating, and resting as much as possible. Grab the cat, some hot cocoa, your laptop, and snuggle up in bed if you have to. I promise, eventually, everything will be o.k.

 

 

 

 

 

Qi of Calm™ – Resonant Botanicals – Sponsored Post.

“I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own, and I was in no way influenced by the company. “

Having a chronic illness comes with many challenges. None of which is more daunting, than finding a product that allows us to live a more normal, active lifestyle. Pain, and anxiety can be very difficult to overcome, and physicians of late, seem to be throwing more and more drugs our way.

Recently, I began seeing a new APRN. She was convinced that she could have me feeling better in no time. Out came the prescription pad, and we very quickly determined that I am extremely sensitive to drugs. I cannot tolerate opioids, or drugs to alleviate nerve pain. I cannot tolerate most anti-anxiety, or anti-depressants. What to do with a person who can’t take drugs? I’m waiting to find out what her plan is.

In the mean time, I have been taking a more natural approach to everything, so, when the opportunity to try Qi of Calm™, from Resonant Botanicals came along, I jumped at the chance.

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Qi of Calm™ is a lotion, made up of a special blend of herbs, green tea, and essential oils. It has a pleasing scent, which does not linger, and it absorbs quickly into the skin, which I love, because I do not like heavy, greasy lotions. This product can be applied without fear of it sticking to clothing, or getting all over bedding. The pump dispenser is also very convenient. No muss, no fuss.

I received my sample of Qi of Calm™ in August. I have been using it as directed, almost daily. A dime sized amount, applied just below the lower left rib, (over the spleen) has a calming effect during stressful moments, or prior to what you know will be a stressful time. Give it a few minutes to settle in. This product also works well at night, especially if, like me, you suffer from bouts of insomnia. Just rub some onto the bottoms of your feet, relax, and let it work it’s magic. Another recommended area of application, is on the front of neck, and over lymph nodes. This has helped me with my neck pain, and with a touch on my temples, has eased my headache pain as well.

My favorite time to use Qi of Calm™, is after a nice relaxing bath in the evening.  A nice cup of decaf green tea, and a little “Qi”, and I am ready for a good night’s sleep. It really is a wonderful product that I have enjoyed using, and will continue to use.

Qi of Calm™  contains a unique blend of organic ingredients. It is safe to use on children, and even with my sensitive skin, has caused no reaction. I would recommend this product to anyone who is looking for a more natural way to manage their anxiety, pain, and insomnia.

Resonant Botanicals has other products available as well. Please visit their website for more information.

All moved in.

I am finally in my new place. The move didn’t quite go as planned, but we got most of it done. Luckily, the little bit that I have at my daughter’s, will come over in bits, and finally the left overs on Saturday.

It’s quiet here. Even Tino appreciates that. It’s only been 4 day, but I have slept well each night, and have been waking up nice and early. Every morning, Tino and I go for a long walk around the grounds, so he can do his biz.

Here’s a few pics of the grounds:

I will admit, all this walking is painful. I am hoping that my body will get used to it. I do the rounds 3 times a day with Tino.

I am interested to see if some of my “allergic reactions” stop now that I am not living in that old moldy house. I’ll let ya know, but even after only 4 days, I am less itchy, that’s for sure.

I still have unpacking, and organizing to do, but wanted to let you all know how it’s going.

Reblog: A Shame Filled Entitlement — I tripped over a Stone.

Social Security is a Federal program we pay for every day of our working lives. I started working when I was 15 and paying into Social Security. I looked at those steep payments being taken from my check every week as a savings plans for retirement. I also knew in case of injury, I was paying into Social Security so it […]

via A Shame Filled Entitlement — I tripped over a Stone.

7 days

One week from today, I will be getting the keys to my new apartment. I have almost everything packed, except for the things I need day to day until the moving begins. To say that I am excited is an understatement.

I have lots of things planned. Everything from diet plans, to hobby projects, and blog posts. I see this as a new beginning. The next chapter of my life.

Next week, I will be offline while I move. (No Wi-Fi) This will be very difficult for me, but I’ll make the best of it. I have been decorating in my mind for weeks, and have a mile long wishlist on Amazon. LOL I won’t be able to buy it all, of course, but little things here & there will brighten up the new place. It is small, and cozy, just as I like it, and bonus is that my sister can stay with me on holidays, rather than in a hotel.

Stay tuned for more news, and photos.

Have a great day!

 

Harvey makes landfall.

I spent last night watching the late night news, and being worried about all of the people in Texas, and the surrounding areas who are being affected by Harvey. When you try and comprehend being out of your home, unable to return for weeks, and wondering if you will still have a home to go back to, it puts a lot of things in perspective. The only thing we can do is hope for the best, and help those who may lose everything.

I keep picturing the news from New Orleans, after Katrina. The bodies in the water, people living on rooftops for days, and the still deserted neighborhoods. Some 12 years later, the devastation is still apparent. I truly hope, for the sake of all, that this storm is not as bad as they predict, and that help comes quickly for those who need it.

Disasters like this, and others, can really make you stop and think about what’s important. We should probably think like this all of the time. Not just when our lives, or the lives of others, depend on it. The world would be a much better place.

Please check on friends and family. Do what you can. Volunteer, give blood, donate clothing, food, or other needed items, take in people, and animals that have lost their homes & families. If you are able bodied, go down, and help.

RED CROSS WEBSITE

F.E.M.A.

This just in:

Update: Everything is going well, and Tino is recovering from his procedure (Neutering).

I can’t tell you how much I am looking forward to our move. I have been packing little by little, and making arrangements. Baby steps. (I have a tendency to over do it.)

Update.

Well, it’s been a rough few weeks. Between the block, which I attribute to “lyme brain” and waiting for news on the next chapter of my life, I have been a mess, mentally, and physically. This morning, I woke up feeling a bit better, my mind seems more clear, and I finally feel like I am able to write a post. (Yay!) So here goes.

If you have read any of my earlier posts, you may know that I have been waiting for news on affordable housing. When I applied for it, I was told it could take up to two years to reach the top of the waiting list. Turns out, it only took 5 months, and I went to look at the available unit on Friday. It is a cute little efficiency, with a nice view of trees, and as soon as I walked in, I knew it was what I wanted. It is reserved for me, and I will sign the lease during the first week of September. I am able to bring Tino as well, but he needs to be neutered. Now comes the race to find an affordable clinic or Vet. I’m sure it will be ok, and I am not going to stress over it. Soon, it will all come together, and we will be in our new home.

Packing. I hate packing. Luckily, anything I do not want, or need, can stay right where it is. 🙂 My daughter can use it.

Yesterday, I received a sample product for review. Stay tuned for more on that! I am very excited. It will be my first sponsored post.

Needless to say, I have a lot to do. Luckily, there is no rush. I will do a little every day, and it will get done.

Please bear with me for the next couple of weeks. I will post updates as things progress.

 

 

 

Blocked.

Over the last couple of weeks, I have been having a difficult time getting blog posts written. It’s not that I don’t have anything to write about, on the contrary, I have many things I want to write about, but for some reason, I just cant get them going. I am definitely blocked. It may be because there is a lot going on, or because I seem to have no quiet time, but whatever the reason, I’m sure it will pass.

Thanks for hanging in there with me.

Bread Dough.

I have had a hard time over the last few years, trying to describe to doctors, and friends, exactly what I feel like on a daily basis. The words “Everything hurts.”, “I’m tired all of the time.”, and “My brain feels like mush.”, were standard. Unfortunately, these descriptions, although accurate, were far too vague for doctors, and only added to the confusion of my friends, and family.

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F**k the dumb shit.

So, I know that I really should write something, but I am just sitting here staring at a blank page. I occasionally click off to Twitter, or Facebook, looking for inspiration, but I am at a loss. Blah.

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Faking it.

Many people with chronic illness, rarely get out into the real world. We are somewhat confined by our conditions, and tend to conserve what energy we do have, for necessary chores. You may never notice us, but we are real people, with real lives, and are probably right there next to you in the checkout line.

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Real life, real problems. Part 1.

I just got a Zillow email, containing a listing for a 2 bedroom apartment, for $950.00 per month. Yes, $950. Now, I know in some parts of he country, that’s not a lot, but here is the NW corner of Connecticut, it is. Or, I should say, it should be seen as a lot.

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Lesson 1544 – Mom uses pot

Many people are using marijuana to heal, and relieve pain. (Re-blog)

Lessons Learned from the Flock

I had written a few weeks back on Facebook that I had started a new program that had drastically reduced my pain (so much that it let me take on that 5K-a-day challenge.) I told people that I’d talk about it when the time was right.

My article in this month’s New Hampshire Magazine came out.

The time is right.

And now I can talk about it.

I’m in New Hampshire’s therapeutic cannabis program. after years of taking narcotics (I was on a pain contract) and after taking so much Motrin that I destroyed my gut, I have finally found significant pain relief. I take a small amount of cannabis in an edible (I don’t smoke) in the morning, afternoon, and before I go to bed and it has made all the difference in the world.

Since starting this program I haven’t taken anything (not even one tiny Motrin) for…

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How to be Zen-like, and Chill.

No matter where you are on social media, you will encounter people who, for whatever reason, do not like you, or what you post. Perhaps, they just disagree with your point of view. In any event, you may experience a heated public argument, or an ugly exchange of emails, messages and follow-up posts.

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…More on skin.

As you may have read in my previous post, “I got bitten, Is it Lyme?“, I promised to talk more about skin issues associated with chronic illness. Here goes.

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Is _____ really Lyme Disease?

Fill in the blank.

There is a huge debate raging over whether or not the Lyme Disease bacteria, Borrelia Bergdorferi, is responsible, in whole, or in part, for diseases such as Alzheimer’s Disease, Multiple Sclerosis, Parkinson’s Disease, and Lou Gehrig’s Disease (ALS), among others. Many people believe that they are all just Lyme in disguise. I don’t believe it; Well, not entirely.

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I got bitten. Is it Lyme?

The skin is the largest organ of the body. It protects us from germs, helps to regulate our body temperature, and allows us to use “touch”, and feel heat and cold. The skin has three layers, each containing elements that it needs to function properly, in order to keep us healthy.

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Lizards, and Bunnies and Cats. (oh my!)

No matter what kind of pet you have, I imagine, at least once, they have caught one or two of your tears. We all need someone, or something to lean on. It’s human nature. we are social creatures, and are not meant to be isolated, and alone.

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Love, hope, and Insanity.

Albert Einstein said, that the definition of insanity was doing the same thing over and over again and expecting different results. If that is true, then I believe, we are a world of insane, and beautifully flawed human beings.

Yesterday I saw my ex. (See “Regret and Resolve.”) He stopped over, and we talked for a bit. The grandkids were so happy to see him, and so was I. I hate calling him my ex. We are not together, but we are, somewhere deep inside, where we keep each other close by always, even if, we, for the moment, hate one another. Is there a name for that? IDK. Insanity? Anyway, I miss him, he looks great, and he smells good (LOL) even our cat, Buster, wouldn’t leave him alone. 15 years of this. We are insane, but we love each other, so there is hope right? We’ll see. To be continued.

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Want To Be Featured on Dream Big? Well, I’m changing Things Up!

Great idea!

Dream Big, Dream Often

Danny's iphone 022As most of my followers know I am big into helping other bloggers gain more exposure. My goal has been to grow a community of like-minded people and I am part way to my goal.  I will no longer be using the “leave a link and I’ll share your blog” tactic.

From now on I am going to share those who interact with my page.  So for those who comment and share my posts I will be selecting from those people to Feature on my page. From comments I will select the comments which convey the spirit of true engagement. From Shares I will randomly select.  So there will be 2 featured posts each day.

Basically I want to reward people who are engaging and sharing.  Good luck!

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Women of a certain age.

We are beautiful, and we are wise.

We come in all colors, shapes, and sizes.

We are strong, and we are kind.

We stand with grace, and peace of mind.

We have voices, that will be heard.

Of that we are assured.

We may be grey, or rainbow dyed,

but take a look at what’s inside.

Hearts of gold, advice that’s sage,

WE are women of a certain age.

—————————–

Jackie Schling – 7/12/2017

 

 

A new day, a “new” diagnosis?! LOL

Well, new to my doctors, anyway. (LOL) My counselor gave me an adult ADHD test today, and I passed? Failed? with flying colors. That is to say, I have Adult ADHD. I knew that. I’ve known it for years, and when I was a child, I had it. It didn’t have a name then, other than, I was a little pain in the ass. 😉 I can even go as far as to diagnose my 2 children, and 3 of my grandchildren…yes, they have it too.

In any event, this will add to my treatment protocol soon enough. Not stressing over it. So far the new meds I am on have me a bit more up-beat, and awake. Pain is still an issue, but, we’re working on that. One day at a time. It’s a process.

I downloaded Flaredown today, looks interesting. It’s a chronic illness app.

Follow me on Twitter if you get a chance, I’m trying to reach 100 followers. @JSchling

Sorry for the short post today, really just an update, I do have some waiting in drafts…stay tuned.

ps: This is my favorite featured image meme EVER!!  LMAO

 

We can work.

We still have our skills.

If you have a disability, and cannot work, chances are that you are struggling to keep your head above water financially. You may have started a GofundMe or YouCaring  campaign, and may be looking of other ways to increase your income.

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The Lessons of Lyme.

It’s not all about me.

Before I started this blog, I was blogging elsewhere. I followed many people there with chronic illness, and I was overwhelmed by the depressing nature of most of their posts. Having a chronic illness sucks. There’s no doubt, but if you wrap yourself in a blanket, and remain in a cocoon of self pity, you will never get better. You will never move forward. As I have said many, many times: You are in charge of your own health. If you are able to blog, and tweet, you should do something productive with your time, and make good use of your spoons.

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How to save the planet.

Humans share the earth with an estimated 8.7 million different species. The number is probably much higher, considering that we have not studied every inch of the planet, but the operative word here is share. The planet Earth is basically a huge terrarium. Everything in it, on it, and around it, works together. It has for millennia. Throughout history, there have been natural events that have changed the face of the planet, but every time, the earth has bounced back, good as new, and life goes on.

Until now.

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My home is under attack!

…and so is yours.

I really enjoy documentaries. I have learned a lot from them. I wish there were more on Netflix…I think I have almost watched them all. Everything from A-Bombs to Zebra migration. They are wonderful.

When someone goes out into the field with a camera, and is filming, there is no director controlling the subjects. The gorillas do what they do. The indigenous people do what they do.

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Regret, and Resolve.

Why sometimes, you need to break your own heart.

About 15 years ago, during my drinking days, I met a guy. Well, I should say I saw a guy. He was just sitting there drinking a beer, and smoking a cigarette. I was immediately drawn to him. I couldn’t stop looking at him. My heart was melting, and I hadn’t even spoken to him.  I had to find out who he was.

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Heal from within.

I was diagnosed with Lyme Disease 3 years ago. I walked into the clinic feeling achy, tired, and completely worn down. I was having trouble sleeping, my blood pressure was out of control, and my anxiety level was very high. They took blood, and sent me on my way with a prescription for 21 days of Doxycycline.

I had never heard of any person having Lyme Disease. Dogs, yes, people no. I immediately went home and googled.

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Diagnosis Roulette.

Anyone who has Lyme, or for that matter, any chronic invisible illness, has probably been misdiagnosed at some point. Chances are, that instead of a clear diagnosis, you seem to be racking up a slew of diseases, and syndromes. With all of that poking, prodding, testing, and medication experiments, you probably feel like a lab rat. I know I do.Read More »

Reblogged: Being Disabled Is a Job

BeingCharis

I’ve heard some say disability benefits are unnecessary hand-outs for people who should just die off, and why should hard-working people foot the bill for people who are lazy, whose lives mean nothing?

The disability process itself mirrors these same sentiments – the 3-5 years (average) process for applying, fighting for, and receiving disability (SSI or SSDI) in the USA is by its nature a grueling process, with analysts hired to deny applicants not once, but twice (standard procedure), forcing the applicant to appeal their case twice over several months before a hearing is granted, which then takes years to schedule due to a shortage of judges. It is a process intended to force people to give up.

You usually have to be literally dying to be automatically granted disability in the USA.

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20 Reasons why you should follow my Blog:

  1. My blog is not just about Lyme.
  2. I am a Mom.
  3. I am a Grandmother.
  4. I am honest.
  5. I am sarcastic.
  6. I am opinionated.
  7. I use “colorful” language.
  8. I love my country.
  9. I love my heritage.
  10. I love learning.
  11. I love food.
  12. I have an open mind.
  13. I make mistakes.
  14. I am creative.
  15. I am patriotic.
  16. I am sometimes lazy.
  17. I am an activist.
  18. I am a good cook.
  19. I give good advice.
  20. If you follow me, I will follow you.

 

 

Spread the word!

So…I am slowly trying to remove all of the bad stuff from my diet. Not an easy thing to do living with my daughter, and 3 grandchildren. Temptation is literally everywhere. There are Milano cookies in the house. MILANO.COOKIES…*sigh*

My goal is to be 100% Vegan at some point in the near future. Today, I saw a few yummy looking recipes here on WordPress, and am looking forward to trying them. My juicer, and the farmers market are waiting for me. The choice to go vegan, came over time. Having a chronic illness was an unfortunate starting point, but with all of this time on my hands, I was able to research, watch informative documentaries, and understand more about the benefits of eating the right foods.

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Proper Diet = Health, for you, & your pets.

For a good while now, I have been trying to take the crap out of my diet. By crap, I mean, sugars, excessive salt, preservatives, pesticides, GMO’s, and anything else I cannot pronounce. After watching a few documentaries, and researching online, it is very clear to me that not only can what we eat make us sick, but it can KEEP us sick.

The other night, I watched a documentary on Netflix called “Pet Fooled”. I really had never thought about my pet foods before. I don’t know why, because I always want my pets to be healthy, I love them. This is why I rarely give them people food. The pet food industry is not well regulated. It is a big business, with overflowing pockets, and great marketers. It has convinced us for years, that this kibble, or that canned food is nutritious, and good for our pets. It really isn’t.

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Rainbows

I love this blogging thing. Although it is hard, on some days for me to string a sentence together, and I am currently struggling with a new pair of glasses, it’s a good way for me to get things off of my chest, and to read what others are dealing with in their lives. More people should do it. That being said, please enjoy my latest rant:

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