Chronic {Invisible} Illness – How to cope with intolerance; and what “well” people should know.

“How to deal with assholes the behavior of others when we can barely function, is a life skill we’ve had to learn the hard way.”

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Re: “Lyme disease remains confusing” – My letter to the Editor(s), and Author.

Imagine my hopefulness when seeing this headline on the front page of our local paper! Needless to say, I was encouraged to see Lyme mentioned, but my hopes for an actual unbiased, fact-based piece of journalism were soon dashed.Read More »

Everybody’s Bill Of Rights

Yes, we do have rights!

There Is Always Hope

Welcome back!

Did you know that as a Patient, you have a Bill of Rights, afforded to you under your Government?  It’s true! There are certain obligations your government has committed to meeting when it comes to your health care and I decided it was a good time to share those with you, as well as to write-up a set of Rights that we have as Patients for our Doctors, Nurses and other Medical Professionals. Are you ready?

Canadian Patients’ Bill of Rights*:

  1. You have the right to be fully informed about one’s medical condition;
  2. You have the right to be advised of the available treatment options;
  3. You have the right to be involved in treatment decisions;
  4. You have the right to information on the qualifications and experience of the health professionals from whom services are received;
  5. You have the right to receive considerate, compassionate and respectful public health services;

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Faith, Hope, and Complacency.

Hey everyone,  I guess it’s been awhile. To be honest, I just haven’t felt inspired enough, or angry enough to crank out a post. My apologies, but, as you know, such is the life of a person with a chronic illness…

Let’s just call it what it is: CHRONIC LYME DISEASE.

Yes, it does exist, and no matter what you are told, it’s NOT all in your head.

I was reminded of this, quite abruptly, while watching “The Bleeding Edge” on Netflix. Follow the link, and read the article. If you have any kind of man made parts in your body, brace yourself. Then, come back, and read my rant.

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Our Drugs – Part 1 – SSRI’s: Prozac®, et al.

Follow me back in time…

Five years ago, while seeking only the 2nd opinion about my illness, I went to an MD, who told me that all of my symptoms were psychosomatic. In his opinion, my symptoms were the result of increased stress, and depression.

(This assumption, by many a health care professional, may in fact, be doing more harm than good.)

So…

He wrote me a prescription for Prozac®.Read More »

As if we needed worse news…

Exotic Tick invades New Jersey…

A team of Rutgers scientists along with federal and state health officials do not know if the Longhorned tick is capable of transmitting Lyme disease but it has been shown to spread other serious diseases like SFTS virus and the pathogen that causes Japanese spotted fever along with many diseases in animals.

“We don’t know how it will behave here in New Jersey,” said Andrea Egizi a visiting professor in Rutgers Department of Entomology. “What we know is that it can carry disease in its native habitats so that’s a concern.”

https://www.northjersey.com/story/news/environment/2018/05/03/exotic-tick-species-invades-new-jersey-and-here-stay/542350002/

 

And Virginia…

The ticks were initially found in New Jersey. (Source: state.nj.us)
The ticks were initially found in New Jersey. (Source:state.nj.us)
ALBEMARLE, VA (WWBT) –

An exotic tick initially found in New Jersey last year was discovered on a beef farm in Albemarle County, the Virginia Department of Agriculture and Consumer Services said Wednesday.

The Haemaphysalis longicornis tick – also known as the East Asian or Longhorned tick – was discovered on an orphaned calf.

Dr. Manoel Tamassia, a vet in New Jersey,  told the “Today Show” last month that the tick comes with some pretty scary properties. For example, females can reproduce on their own, so one female by herself could produce thousands of eggs, he said.

Experts aren’t yet sure which North American diseases the tick can transmit, but it has been shown in Asia to spread diseases related to Rocky Mountain spotted fever and anaplasmosis.

“Livestock producers and owners should notify VDACS if they notice any unusual ticks that have not been seen before or that occur in large numbers on an individual animal,” VDACS said in a news release.

http://www.nbc12.com/story/38206399/exotic-tick-found-on-cattle-farm-in-virginia

What is the SFTS Virus???

Read on: https://www.ncbi.nlm.nih.gov/pubmed/26923953

 

Dr. Fein’s Excellent Medical Summary for Chronic Fatigue Syndrome and Lyme Disease — How to Get On

Lori Reico was approved for disability in three months. She was kind enough to share this letter from her doctor to help others. Here’s an great example of how a letter does not have to be long to be excellent. This fantastic medical summary was written by Dr. Lesley Ann Fein. Although Lori has Chronic […]

via Dr. Fein’s Excellent Medical Summary for Chronic Fatigue Syndrome and Lyme Disease — How to Get On