Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)

This is something everyone should read.

“There are rumors that Dr. Eugene Shapiro has been selected to participate as a member of the Tick-borne Disease Working Group. Shapiro has spent a career discrediting the sick and disabled along with the courageous clinicians attempting to help these patients as he coauthored the deplorable Lancet article referenced below. There is no place for Shapiro on the TBDWG as he is a disgrace to the medical profession.” Continue reading “Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)”

Faith, Hope, and Complacency.

“Let me tell you something my friend. Hope is a dangerous thing. Hope can drive a man insane.“ – (Red) The Shawshank Redemption.

Hey everyone,  I guess it’s been awhile. To be honest, I just haven’t felt inspired enough, or angry enough to crank out a post. My apologies, but, as you know, such is the life of a person with a chronic illness…

Let’s just call it what it is: CHRONIC LYME DISEASE.

Yes, it does exist, and no matter what you are told, it’s NOT all in your head.

I was reminded of this, quite abruptly, while watching “The Bleeding Edge” on Netflix. Follow the link, and read the article. If you have any kind of man made parts in your body, brace yourself. Then, come back, and read my rant.

Continue reading “Faith, Hope, and Complacency.”

Heal from within.

F.Y.I., googling Lyme Disease will send you into an endless loop of contradictory information, symptoms, and conspiracy theories. If you are reading this, I will assume that you have already done it. Chances are, you don’t know what, or who to believe.

I was diagnosed with Lyme Disease 3 years ago. I walked into the clinic feeling achy, tired, and completely worn down. I was having trouble sleeping, my blood pressure was out of control, and my anxiety level was very high. They took blood, and sent me on my way with a prescription for 21 days of Doxycycline.

I had never heard of any person having Lyme Disease. Dogs, yes, people no. I immediately went home and googled.

Continue reading “Heal from within.”

Dr Richard Horowitz Answers:

In a recent Q&A with Dr. Richard Horowitz, he was asked the following, and answered.

Via Kriss Constantine 💚

Great Info!💚 when we asked Dr. Horowitz he answered!!!!
Question:  What are the most common causes of treatment failure?
Answer:  Without a doubt it is the co-infections (Babesia, Bartonella, Mycoplasma) or because the Lyme has not been treated aggressively enough. So, we have to treat generally – the cell wall forms of the Lyme, using the cell wall drugs like penicillins, norcephalosporins. We have to use cystic drugs that could be Plaquenil or grapefruit seed extract, but rarely Tindamax, Tinidazole, and Flagyl. We use the intracellular rotations. So the issues of treating all three forms of the Lyme and biofilms like Serrapeptase are some of the basics, but what happens is some of the doctors just don’t rotate often enough, so I find that I have to rotate every 30 days. If someone is not noticing that they are getting better within 30 days of a treatment, it’s either because they are not on a cell wall drug regimen or the intracellular regimen they are on may be herxing them. You have to know the wiring of the body.

Continue reading “Dr Richard Horowitz Answers:”

The truth about Lyme…

What you should know.

May is Lyme disease awareness month.  I am sure you have seen many tweets, and social media posts about it.  You may even know someone who has it, but if you do not have it, you may not realize how devastating, confusing, and life altering it can be.

Lyme disease (and other infections that can come with it) can creep up on you slowly, or hit you all at once. It can start with something simple such as having flu-like symptoms, or it can cause seizures.  It can give you a migraine, or a heart attack. Nothing, and no one can predict what symptoms you will have.

There is no readily available, (Physician accepted) accurate test for Lyme.  Even if you see the attached tick, and have a bullseye rash, you can still test negative.  If you test positive, you may be told it is false positive.  You may also be told “There is no Lyme in this State.”  There is also no way to tell how long you have had it. There is no vaccine, and there is no cure. It is a true Pandemic.

Lyme is known as the great imitator, because it mimics the symptoms of many other diseases, and syndromes.  There have been people who have been diagnosed with Fibromyalgia, CFS, ALS, Alzheimers, Parkinsons, MS, Bi-Polar disorder, Depression, PTSD, and many other things…who actually have Lyme.

If you want to know what it feels like to have Lyme, look at the list above of the ailments it mimics.  That is what it is like to have Lyme. Having one, or all of those, on any given day, and in any combination.

Why is Lyme so devastating? How can it cause all of these ailments? Why can’t we test for it and cure it?

Because the Lyme bacteria is a Spirochete.  (A Spirochete (order Spirochaetales), also spelled spirochaete, is any of a group of spiral-shaped bacteria, some of which are serious pathogens for humans, causing diseases such as syphilis, yaws, Lyme disease, and relapsing fever.) Spirochetes can enter all tissue, bone, and your brain.  When faced with an unfavorable environment, such as the introduction of antibiotics, these spirochetes form round bodies, or “cysts” as a method of self-preservation. They literally hide from the tests we use to find them, and the medications we take to kill them.

More here on spirochetes.:  http://www.environmentalevolution.org/environmentalevolution.org/Fair_Use_files/312-Roundbodies.pdf

Lyme can be transmitted to you by ticks and other vectors, blood transfusions, sexual contact, and in utero.

You can believe the Doctors, the IDSA, and the CDC, but the fact of the matter is that there IS proof that Lyme, and Chronic Lyme exist. There IS proof that the tests are inaccurate.  There are 300,000 new cases (or more) each year, and it can kill you.  Lyme Advocates have been battling for the truth for 40 years. There will be accurate tests, there will be a cure, but we have to spread the word. We have to fight together, to bring about change, and much needed help for the millions of men, women and children affected all over the world.

I have Lyme, and I need a cure.

Antibiotics, and Probiotics

No matter what stage of Lyme you are in, if you are taking antibiotics, you should also be using a good probiotic.

Here’s why:

Antibiotics are often life-saving medications that eradicate bacterial infections, but they cause collateral damage to the beneficial bacteria that inhabit our guts as well. Up to one-third of antibiotic users may experience antibiotic-associated diarrhea of impaired bacterial functioning. In some cases, eradication of too many good guys can enable a disease-causing strain of bacteria, called Clostridium difficile (“C. diff”) to gain a foothold in the intestines and cause a severe life-threatening diarrheal infection. Some experts hypothesize that even in cases where antibiotics do not cause noticeable GI symptoms, the ecological changes they precipitate in the gut can have adverse effects on longer-term health.

For these reasons, it makes sense to take supplements of probiotics, or strains of bacteria or yeasts that benefit your health, during and following treatment with an antibiotic medication. In some cases, doing so can prevent , or at least lessen the severity of AAD.

As always, ask your doctor to recommend a probiotic that will benefit you. There are many brands, and types on the market, and they are NOT all the same.

Probiotics, what they do...
Probiotics, and what they do…