Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)

This is something everyone should read.

“There are rumors that Dr. Eugene Shapiro has been selected to participate as a member of the Tick-borne Disease Working Group. Shapiro has spent a career discrediting the sick and disabled along with the courageous clinicians attempting to help these patients as he coauthored the deplorable Lancet article referenced below. There is no place for Shapiro on the TBDWG as he is a disgrace to the medical profession.” Continue reading “Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)”

Activism: Fighting for Lyme Disease Awareness.

Activism.

ac·tiv·ism
ˈaktəˌvizəm/
noun
  1. the policy or action of using vigorous campaigning to bring about political or social change.

For many, the words “activism”, or “activist” conjure up memories of the 1960’s, with peace marches, love-ins, and racial equality at the forefront of most protests. As many know, however, we have a much richer history than the activism of the 1960’s. Our country, and in fact many throughout the world, were built on the results of activism. The selfless acts of protest, picketing, and standing up for each other, has always been the way to get things done, despite the injury, loss of life, or jail time one might face.

Continue reading “Activism: Fighting for Lyme Disease Awareness.”

This is how it is.

I am about to write a post with out chaging any of the mistakes I make during it’s writiing, no grammar fixes, spelling corrections, or other efforts to look like I have a brain will be used. I’m doing thisa so people witkk understand theat we are all not on here typing a gazillion wordsperminute, like some kid wityhan iphone This is what pain, brain fog,and no voordination liikjs like.

It’s been rainiy, dreary, and just fucking miserable in CT, and I’ve been feeling it. I haven’t been doing much, aside from sitting around, ad waiting for my new CBD to come. I can’t wait to tell you all about it. I love it. Best one yet.

I wqoke up with my arms nkumb last night at about 11:25 am. I couldn’t goback to sleep, and I’m still up.

I think I’m herxing. It’s the new CBD. Time to grab the Burber and epsom salts, and vinegas.

Well, if I’m herxing, it’sa working right? I hope so. cut my pain in half the other day, so that made me very happy. I’d like to be Pharma-free soon. I’m going to give it about a week before I come on here and try to tell you that this CBD tincture is the best ever.

There are balls in the eir, I just hopw I can catch some.

In case you havent noticed, or I haven’t told you,m there is a nre website, anf forup up here :  https://www.lessonslyme.com/

It’s for everysone. Come and join, and make some posts. It’s quiet in there, and still smells like a new car.

 

Anyway, I need to go lie down, I’m all sdrmbled. it took me 45 minutes to write this.

 

❤ – J

When you just…can’t.

I’ve been waiting for Spring. I live in New England. Right now, we are having “Second Autumn”. It’s like real Autumn, only it comes after Spring. It’s cold damp, and rainy. It is a pain inducing nightmare.

I have calls to make, emails to write, I have to go out later, and I just want to curl up in a ball, on the couch, with my dog, and a blanket.

I can’t keep my brain focused, even with my meds properly ingested this morning, and I just don’t care.

Any “normal” person would be complaining of a 8 on their pain scale, and would probably want to die. I am not normal. If the pain scale went from 1-20, instead of 1-10, I’d probably be at a 13.

I’m only sitting here writing this, to keep going. To make it through the day. To resist the urge to lie down. I really do have to go out later, it is not optional.

The one bright spot, is that something I ordered came today. I can’t tell you what it is just yet, but keep watching for updates. This is something I hope to be able to share with you all in the next few days.

Till then, carry on my warrior friends, better days are coming. ❤ J

Petition: Pass H.R.220 – Ntl. Lyme and Tick-Borne Diseases Control and Accountability Act of 2019

Please sign, and share.

https://www.change.org/p/house-committee-on-energy-and-commerce-pass-h-r-220-ntl-lyme-and-tick-borne-diseases-control-and-accountability-act-of-2019?recruiter=185100571&utm_source=share_petition&utm_medium=copylink&utm_campaign=share_petition&utm_term=Search%3ESAP%3EUS%3EBrand%3EProper%3EExact

Lyme Warrior – Ink to End Lyme 2019

Lyme Warrior is at it again, with their awesome “Ink to End Lyme” campaign.

Visit them on Facebook here: https://www.facebook.com/LymeWarriorUS/

Or on their website here: http://lymewarrior.us/

Many shops are hosting, and it is for a great cause. If you have a tattoo addiction, Lyme Disease, or know someone who does, please show your support.

 

Calling all (invisible) Warriors!

Every day I see more and more people being added to groups, and forums who are chronically ill,  and confused about what to do. Some have been diagnosed with Lyme disease, some with Fibro., MS, and/or ME/CFS, and many more. Some carry the badge of “All of the Above”. Continue reading “Calling all (invisible) Warriors!”