Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)

This is something everyone should read.

“There are rumors that Dr. Eugene Shapiro has been selected to participate as a member of the Tick-borne Disease Working Group. Shapiro has spent a career discrediting the sick and disabled along with the courageous clinicians attempting to help these patients as he coauthored the deplorable Lancet article referenced below. There is no place for Shapiro on the TBDWG as he is a disgrace to the medical profession.” Continue reading “Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)”

Activism: Fighting for Lyme Disease Awareness.

Activism.

ac·tiv·ism
ˈaktəˌvizəm/
noun
  1. the policy or action of using vigorous campaigning to bring about political or social change.

For many, the words “activism”, or “activist” conjure up memories of the 1960’s, with peace marches, love-ins, and racial equality at the forefront of most protests. As many know, however, we have a much richer history than the activism of the 1960’s. Our country, and in fact many throughout the world, were built on the results of activism. The selfless acts of protest, picketing, and standing up for each other, has always been the way to get things done, despite the injury, loss of life, or jail time one might face.

Continue reading “Activism: Fighting for Lyme Disease Awareness.”

Chronic {Invisible} Illness – How to cope with intolerance; and what “well” people should know.

“How to deal with assholes the behavior of others when we can barely function, is a life skill we’ve had to learn the hard way.”

Continue reading “Chronic {Invisible} Illness – How to cope with intolerance; and what “well” people should know.”

This really “bugs” me…

In this information age, it is a daunting task to sift through all of the misinformation out there. Even seemingly small things, such as calling a tick a “Lyme Tick”, or assuming that only Dog ticks feast on dogs…SMH… can result in confusion, causing people to put off seeing a doctor, under the assumption that there is no risk.

If you have Lyme Disease, or any vector borne illness, you already know how difficult it is to be properly diagnosed, and treated. You have most likely been ridiculed, dismissed, or labeled “nuts”. Chances are, you have been told that your test results showed a false positive result, or, that there is no such disease in the area you live in.

This lack of concern, and denial, often results in chronic conditions, and a lifetime of pain.

Continue reading “This really “bugs” me…”

Yeah, it really is, all about Me.

I didn’t plan to get sick. I didn’t know I was getting sick, and there was really no way to stop it. As soon as I started to feel “not right”, I took myself to the doctor. Many doctors in fact, all of whom have told me, that I should not work. I have kept up with this never-ending series of tests, referrals, and doctor visits, with the hope that one day, I will get well, or at least be able to function better. Continue reading “Yeah, it really is, all about Me.”

OMG! WTF? LOL!

Wanna join the club? You better have a pair of teflon PJ’s, sarcasm slippers, a nice hot cup of  “DILLIGAF”, and handful of “fukitol” to get you through the day.

Warning: If you are a sensitive person with a need for a safe space, you should get off of my blog right now. It’s going to get ugly. I feel like shit today, having to cancel my PT because I am in too much pain, and they seem to forget I am a whole person, with a chronic illness, not just a few lumbar vertebra, and a sciatic nerve.

Speaking of nerves, a shitload of people are on my last one.

Continue reading “OMG! WTF? LOL!”

What’s in your wallet?

I spent one hour, and twenty minutes on hold yesterday, waiting to speak with a human being, at the Connecticut Department of Social Services.  In case you haven’t heard, the State of Connecticut has no budget. For one reason, or another, the powers that be in the capital city, can not agree on how to effectively write, propose, discuss, or implement a budget for the State.

Continue reading “What’s in your wallet?”