Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)

This is something everyone should read.

“There are rumors that Dr. Eugene Shapiro has been selected to participate as a member of the Tick-borne Disease Working Group. Shapiro has spent a career discrediting the sick and disabled along with the courageous clinicians attempting to help these patients as he coauthored the deplorable Lancet article referenced below. There is no place for Shapiro on the TBDWG as he is a disgrace to the medical profession.” Continue reading “Tuttle’s Letter to the TBDWG — Madison Area Lyme Support Group (Blog Post Share)”

Activism: Fighting for Lyme Disease Awareness.

Activism.

ac·tiv·ism
ˈaktəˌvizəm/
noun
  1. the policy or action of using vigorous campaigning to bring about political or social change.

For many, the words “activism”, or “activist” conjure up memories of the 1960’s, with peace marches, love-ins, and racial equality at the forefront of most protests. As many know, however, we have a much richer history than the activism of the 1960’s. Our country, and in fact many throughout the world, were built on the results of activism. The selfless acts of protest, picketing, and standing up for each other, has always been the way to get things done, despite the injury, loss of life, or jail time one might face.

Continue reading “Activism: Fighting for Lyme Disease Awareness.”

Vaccines

“The human immune system is a complex network of cells and organs that evolved to fight off infectious microbes.”

Now, the links are below, and you can click on them to read more, on your own. My point with this post is that many people are unaware how vaccines work, and would rather argue than learn. I have only included the most common, to keep it short. This is not a statement, of my opinion, this is “fact” as you can see by following the links.

“The human immune system is a complex network of cells and organs that evolved to fight off infectious microbes.”

Much of the immune system’s work is carried out by an army of various specialized cells, each type designed to fight disease in a particular way. The invading microbes first run into the vanguard of this army, which includes white blood cells called macrophages (literally, “big eaters”). The macrophages engulf as many of the microbes as they can.

Ref: NIH

The cells in our body have a natural ability to fight disease, and develop an immunity.

The theory behind vaccines:

Vaccines teach the immune system to fight by mimicking a natural infection.”

For example, the yellow fever vaccine, first widely used in 1938, contains a weakened form of the virus that doesn’t cause disease or reproduce very well. Human macrophages can’t tell that the vaccine viruses are weakened, so they engulf the viruses as if they were dangerous. In the lymph nodes, the macrophages present yellow fever antigen to T cells and B cells.

A response from yellow-fever-specific T cells is activated. B cells secrete yellow fever antibodies. The weakened viruses in the vaccine are quickly eliminated. The mock infection is cleared, and humans are left with a supply of memory T and B cells for future protection against yellow fever.

Types of vaccines:

  • Live, attenuated vaccines
  • Inactivated vaccines
  • Subunit vaccines
  • Toxoid vaccines
  • Conjugate vaccines
  • DNA vaccines
  • Recombinant vector vaccines

 

Live-attenuated vaccines:

Live vaccines use a weakened (or attenuated) form of the germ that causes a disease.

Because these vaccines are so similar to the natural infection that they help prevent, they create a strong and long-lasting immune response. Just 1 or 2 doses of most live vaccines can give you a lifetime of protection against a germ and the disease it causes.

But live vaccines also have some limitations. For example:

Because they contain a small amount of the weakened live virus, some people should talk to their health care provider before receiving them, such as people with weakened immune systems, long-term health problems, or people who’ve had an organ transplant.
They need to be kept cool, so they don’t travel well. That means they can’t be used in countries with limited access to refrigerators.

Live vaccines are used to protect against:

  • Measles, mumps, rubella (MMR combined vaccine)
  • Rotavirus
  • Smallpox
  • Chickenpox
  • Yellow fever

Inactivated vaccines

Inactivated vaccines use the killed version of the germ that causes a disease.

Inactivated vaccines usually don’t provide immunity (protection) that’s as strong as live vaccines. So you may need several doses over time (booster shots) in order to get ongoing immunity against diseases.

Inactivated vaccines are used to protect against:

  • Hepatitis A
  • Flu (shot only)
  • Polio (shot only)
  • Rabies

Subunit, recombinant, polysaccharide, and conjugate vaccines

Because these vaccines use only specific pieces of the germ, they give a very strong immune response that’s targeted to key parts of the germ. They can also be used on almost everyone who needs them, including people with weakened immune systems and long-term health problems.

One limitation of these vaccines is that you may need booster shots to get ongoing protection against diseases.

These vaccines are used to protect against:

  • Hib (Haemophilus influenzae type b) disease
  • Hepatitis B
  • HPV (Human papillomavirus)
  • Whooping cough (part of the DTaP combined vaccine)
  • Pneumococcal disease
  • Meningococcal disease
  • Shingles

“Blaming un-vaccinated people for an outbreak of measles, is ridiculous.” <<< This is my opinion.

 

 

 

 

 

Kratom: Wonder Leaf, or Deadly Crutch? A Review of “A Leaf of Faith”.

In “A Leaf of Faith”, Chris, who struggles with chronic pain, and addiction on a daily basis, delves into the Kratom debate.  His interviews with doctors, scientists, and politicians, on both sides of the debate, are thought provoking,

I have a terrible head cold, so last night, I was scrolling through Netflix, and found a documentary with an interesting name: “A Leaf of Faith”. I had no idea what it was about, it is a new release, and I saw the word “Kratom” in the description. Discussions about the use of Kratom have been popping up all over, and when something like this comes along, I have to know more.  Continue reading “Kratom: Wonder Leaf, or Deadly Crutch? A Review of “A Leaf of Faith”.”

Featured Site: Lyme Warrior

Lyme Warrior is a 501(c)(3) nonprofit organization fighting to bring awareness and support to the sufferers of the silent, debilitating epidemic of Lyme Disease. Proceeds fund Lyme Disease research, awareness campaigns, and impoverished Lyme Warriors.”-LW Mission Statement

The President, and Founder of Lyme Warrior, Lauren Lovejoy, and her team of volunteers, work tirelessly, to spread awareness of this insidious disease, the many pitfalls that sufferers face, and the lack of proper testing, and treatment. Despite having Lyme themselves, and many of them being home, or bed-bound, the team works together through social media, telephone, and email, to accomplish their goals.

The Lyme Warrior website contains a wealth of information about the disease itself, tips to avoid ticks, and treatment options.

Fundraising is a large part of their focus. The funds raised are donated to various research organizations, and also to individual Lyme sufferers who need help. They have put together promotions such as “Ink to end Lyme Disease“, and sell “Lyme Warrior” apparel, which not only raise funds for the non-profit, but also help to increase awareness world-wide.

If you, or someone you know has Lyme Disease, please visit the Lyme Warrior site, and check out all that they have to offer the Lyme community. If you are able, please donate, volunteer, or purchase a Lyme Warrior product.

ovaLWl-1

 

 

…a Redress of Grievances.

I believe that it is not only our right, but also, our responsibility to speak up when we feel the need. The Lyme Pandemic surely indicates a need.

This morning, in one of my groups, on Facebook, a woman posted that she & her husband had sent a letter to President Trump regarding the Lyme crisis, how it has devastated her family, and the corruption within the CDC, and IDSA.

The response from the White House was predictable:

Lymeprez.

Now, I’m sure we all know that this is a standard response to just about any subject matter, but  Lyme Disease, is not just any subject, to those who suffer with it daily.

If you have Lyme, you know how this reads. It reads like another off handed dismissal of our condition. Unfortunately, no matter who we write to, or what the cause, chances are we will receive the same type of form letter in return. We deserve better. Yet, we cannot blame the current POTUS. This is not his fault. Every politician has staff. Every office has policies to follow. The form response, is an example of this.

In response to the people who made this all about Trump:

Our health is far more important than whether we like, or dislike the current President.

Moving on. OK?

I think we have an opportunity here. (After all, he did just release (most of) the JFK files.)

#LymeLettersforChange is not a new campaign. You can find the page on Facebook. Their events page has detailed info about the campaign, and instructions. Although you may have missed out on this event, or had been unable to participate, there is much you can still do. Either contact the ladies at “Lyme Letters for Change“, or strike out on your own. You can even write to the Editor of your local newspaper, or to those celebrities who have recently publicly admitted to suffering with Lyme Disease. Every letter helps to educate, and increase awareness. This is not about politics, this is about our lives, and our right to be treated fairly.

The First Amendment to the US Constitution guarantees the right of all citizens to communicate with their elected representatives:

“Congress shall make no law respecting an establishment of religion, or prohibiting the free exercise thereof; or abridging the freedom of speech, or of the press; or the right of the people peaceably to assemble, and to petition the Government for a redress of grievances.”

I believe that it is not only our right, but also, our responsibility to speak up when we feel the need. The Lyme Pandemic surely indicates a need.

Q: Who should I write to?

A: Members of the Senate, Listed Here, and House of Representatives,  a.k.a congressman/congresswoman. Listed Here. Click on the name to be taken to their website.

Q: Can I write to the President?

A: Yes. GO HERE.

Q: How do I write a letter to a representative?

A: Here are some tips. How to write effective letters to Congress.

Here are some issues that are important to us:

  1. Funding for research into accurate testing, treatments, and cures for all stages of Lyme Disease, and co-infections.
  2. Recognition of Lyme Disease as a potentially chronic, persistent infection.
  3. Acceptance of Chronic Lyme Disease and its symptoms as a debilitating illness, addition of Lyme Disease to the SSA’s list of Impairments.
  4. Allow Doctors to treat persistent Lyme Disease as they see fit, without fear of prosecution, or persecution.

I’d also like to add, as a side note, that every healthcare professional, should be required to take some sort of sensitivity training, so they can at least pretend to believe that we have Lyme Disease, and that it is a serious, potentially deadly illness, whether they believe it or not. <Sarcasm>

So, there you have it. We can all do something to advocate for ourselves, and others. We can write letters, call, or send email. Simple, and relatively inexpensive ways to make our grievances known.

The squeaky wheel gets the grease.

 

 

 

 

 

 

 

 

 

 

May is Lyme Disease Awareness Month.

March on Washington D.C. Every year, those who can, head to Washington D.C. to increase awareness of Lyme Disease, associated infections, and the plight of the sufferers. Please support them, and their cause.