Lately I have been going on a lot about CBD products, and their benefits. I have tried quite a few, and have found what I think is going to be my go-to brand. I will share that with you in a moment.
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Imagine my hopefulness when seeing this headline on the front page of our local paper! Needless to say, I was encouraged to see Lyme mentioned, but my hopes for an actual unbiased, fact-based piece of journalism were soon dashed. Continue reading “Re: “Lyme disease remains confusing” – My letter to the Editor(s), and Author.”
“Let me tell you something my friend. Hope is a dangerous thing. Hope can drive a man insane.“ – (Red) The Shawshank Redemption.
Hey everyone, I guess it’s been awhile. To be honest, I just haven’t felt inspired enough, or angry enough to crank out a post. My apologies, but, as you know, such is the life of a person with a chronic illness…
Let’s just call it what it is: CHRONIC LYME DISEASE.
Yes, it does exist, and no matter what you are told, it’s NOT all in your head.
I was reminded of this, quite abruptly, while watching “The Bleeding Edge” on Netflix. Follow the link, and read the article. If you have any kind of man made parts in your body, brace yourself. Then, come back, and read my rant.
In this information age, it is a daunting task to sift through all of the misinformation out there. Even seemingly small things, such as calling a tick a “Lyme Tick”, or assuming that only Dog ticks feast on dogs…SMH… can result in confusion, causing people to put off seeing a doctor, under the assumption that there is no risk.
If you have Lyme Disease, or any vector borne illness, you already know how difficult it is to be properly diagnosed, and treated. You have most likely been ridiculed, dismissed, or labeled “nuts”. Chances are, you have been told that your test results showed a false positive result, or, that there is no such disease in the area you live in.
This lack of concern, and denial, often results in chronic conditions, and a lifetime of pain.
I learned about ACA a few months ago, but it was mentioned in an article I read this morning, so I took that as a hint to look further.
For well over three years now, I have had what the doctors like to call psoriasis. I have been referred to a dermatologist, who was useless, asked no pertinent questions, and said “…here…use this cream.”. Even my PCP has sent me home with creams. These topical treatments do not work on my skin issues.
These skin issues, first appeared on my right upper arm. They then also presented on my left forearm, and upper back, at my shoulders. They can come in the form of just a little blister like dot, or a patch of what looks, and feels like dry skin. Sometimes they itch, and sometimes they don’t. They never fully heal, and sometimes, leave scars that are ugly, and thick.
I learned about ACA a few months ago, but it was mentioned in an article I read this morning, so I took that as a hint to look further. This is the article: Pathogenesis, and Clinical Manifestations of Borrelia burgdorferi
- The third stage is usually characterized by chronic arthritis or acrodermatitis chronica atrophicans (ACA), a diffuse skin rash, and may continue for years.
I have had a little post it, sitting on my desk for months, and I keep forgetting to pass it on to my doctor. A reminder, forgotten in a pile of paperwork. I won’t forget again.
Because ACA is primarily found in older individuals, and late stage infections of BB/Lyme Disease, it is often not connected initially, because of forgotten tick bites, improper diagnosis of Lyme, and/or disbelief in Chronic, or Late Stage Lyme Disease.
Progressive allodynia (exaggerated reaction to pain) is a characteristic symptom and thus may be a clue to the diagnosis of ACA. Patients commonly report spontaneous acral pain and paresthesia or dysesthesia or cognitive dysfunction.
Read more here: Acrodermatitis Chronica Atrophicans Clinical Presentation
Unfortunately, in order to be diagnosed with ACA, you would need to, at some point be diagnosed with Lyme Disease, or be considered to have Chronic, Late Stage Lyme. To top it all off, and much to my disappointment, the treatment for this skin disorder, is basically the same as the treatment for Lyme, that many have been denied.
The choice of treatment for acrodermatitis chronica atrophicans (ACA) depends on the coexistence of other signs or symptoms of Lyme borreliosis. One should also take into account the results of serologic tests. If not treated early, ACA can be associated with joint manifestations and persistent finger deformities.
“Borrelia burgdorferi infection was diagnosed with enzyme-linked immunosorbent assay, indirect immunofluorescence assay (titer: 1:1,024), and Western blot. Histologic examination confirmed the diagnosis of acrodermatitis chronica atrophicans”.
If extracutaneous Lyme borreliosis signs are absent and the level of specific antibodies is low, the authors usually recommend oral doxycycline or oral amoxicillin administered over a period of 3 weeks. READ MORE
Because the initial cause seems to be a chronic infection of LB, and also because this infection is surrounded by controversy, and is often denied due to inaccurate testing, it again, falls on the shoulders of Lyme Literate medical providers, and patients themselves to research, and present facts to the communities involved. It seems to me, that with knowledge of ACA, we can reverse diagnose to LB, and hopefully find a treatment that works for both.
Please pass along this info to anyone who needs it. I have also posted the reference links below.
Note: The reader may notice, that some articles state, a rarity in the US, and the mention of several different strains of Borrelia. Keep this in mind. This is why many tests for Borrelia are inaccurate.
If you feel that you might have this condition, present facts, and reference material to your health care provider. We need to increase awareness.
F.Y.I., googling Lyme Disease will send you into an endless loop of contradictory information, symptoms, and conspiracy theories. If you are reading this, I will assume that you have already done it. Chances are, you don’t know what, or who to believe.
I was diagnosed with Lyme Disease 3 years ago. I walked into the clinic feeling achy, tired, and completely worn down. I was having trouble sleeping, my blood pressure was out of control, and my anxiety level was very high. They took blood, and sent me on my way with a prescription for 21 days of Doxycycline.
I had never heard of any person having Lyme Disease. Dogs, yes, people no. I immediately went home and googled.